First Lady Karen Pabón | First Lady Project Kerak Shriners

Motivated by a patient benefiting from care at Shriners Hospitals for Children-Northern California for Cerebral Palsy, First Lady Karen Pabón has elected to raise money to benefit the Comprehensive Cerebral Palsy Program at the hospital.  Specifically, the First Lady wants to raise money to help the hospital support and welcome each new patient.  Referrals for the Cerebral Palsy Program have grown by double digits in each of the last three years.  Funding will ensure we can continue to offer the depth and range of caregiver talent necessary for the program, as well as support the development of new family educational materials, and install animated avatars for the children to interact with during their evaluation sessions in the Motion Analysis Center.

All funding from this project will be designated for Karen Pabón’s First Lady Project and used for the benefit of new referrals to the Comprehensive Cerebral Palsy Program at Shriners Hospitals for Children-Northern California.

 

 

 

 

 

 

Comprehensive Cerebral Palsy Center

Shriners Hospitals for Children – Northern California, believes every child deserves the brightest possible future. Children who are born with a disability require specialized care to allow them to rise to their highest potential.

The multi-disciplinary team of experts at SHCNC cares for children with cerebral palsy (CP), the most common cause of motor disability in children in North America and worldwide. According to the Centers for Disease Control and Prevention, about one in every 300 children is identified with cerebral palsy, a neurological disorder that affects a child’s coordination, balance, and ability to walk. Each child with cerebral palsy has a unique pattern of neurological involvement, some with barely noticeable differences and others with more significant disability. Many children with cerebral palsy will have spasticity, or tight muscles, that make walking and balance more difficult.

 

Medical Concentration

  • Equinovalgus
  • Equinovarus – neuromuscular club foot
  • Femoral antiversion
  • Femoral valgus
  • Gait disorders
  • Hallux valgus – neuromuscular bunion
  • Hip dislocation
  • Hip subluxation
  • Pes Cavus – high arched foot
  • Planovalgus – neuromuscular flat foot
  • Scoliosis
  • Spasticity

 

Commitment to Excellence

Driven by excellence in all facets of care, Shriners Hospital is home to one of the largest cerebral palsy programs in the region.

 

Treatment: Since cerebral palsy affects so many facets of a child’s life, SHCNC brings together services for these children into one center, allowing for complete care of the child. Beginning with their referral to care, all children benefit from a comprehensive program that includes movement analysis, spasticity management, complex surgical care and rehabilitation.

First appointments introduce the child and his or her family to an on-site team that includes a musculoskeletal pediatrician, physical and occupational therapists, kinesiologists, and orthotists. A custom course of care is developed based on the results of an all-inclusive analysis of each child, which requires a medical examination, diagnostic imaging, movement analysis, and the development of a patient and family profile.  Frequently, orthotics is integrated into the initial stages of care which includes fitting, sizing and manufacturing of one or more orthotic devices.

 

Program Profile

  • More than 1,000 ongoing active CP patients with 30 new patient referrals per month;
  • 352 cerebral palsy births expected in the region on an annual basis;
  • SHCNC is the highest volume institution for Single Event Multi Level Surgery (SEMLS) and the only one that offers comprehensive, integrated multidisciplinary care for children with Cerebral Palsy – ambulatory, non-ambulatory, spine, and upper extremity in the region;
  • No barriers to care assure all children with CP have access to custom courses of care focused on best possible outcomes.

 

Research: Patients also benefit from clinical trials and scientific research led by doctors and scientists determined to improve outcomes for children diagnosed with cerebral palsy. The Center for Excellence in Cerebral Palsy closely examines the results of cerebral palsy treatment through clinical outcome studies. The clinical research is complemented by scientific studies performed at the Institute of Pediatric Regenerative Medicine (IPRM), a joint project of Shriners Hospitals for Children and the University of California, Davis School of Medicine. Located inside the Northern California Shriners Hospital, the IPRM is home to an international team of scientists devoted to bringing discoveries from the research laboratory to the bedside. 

 

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